The Chronically Chronic Warrior

First off, if you don't get the title please do yourself a favor and go watch "What About Bob" I think it's on Amazon Prime. It's phenomenal! Bill Murray is a LEGEND! Anyhow, let's continue from my last post. I got Prednisone! Yay! But also not yay, because that made the waiting... longer. The day after my last dose of Prednisone actually wasn't too bad! I still felt pretty good, till I hit a wall at about 3 pm at work and I was barely able to keep my head up and eyes open. I don't think I was drooling but I very well could have been, I felt like I was. I talked to my boss, had my mom on the phone with me as I drove home just to be safe, got home and zonked out. It was like someone hit me in the face with a shovel and then flipped my energy switch to off. Then the next day, it was bad. I thought hitting the wall was bad? Well, day 2 the wall fell on me! Every joint in my body hurt, my head felt like inside out Hellraiser, like I had ice picks or nails ...

Well, let's continue this crazy story I call my journey. If you read this and are lost check my last post! So, the emergency room doctor told me to go see a dermatologist to get a skin test. They gave me my papers, I got dressed and left the hospital. When I got home I got on my insurance website to see if the doctor they referred me to was covered. Then I realized, the hospital I just went to, where they just ran multiple tests, was not covered at all. Great. All I could think of is, I'll deal with that later, let's figure this out and get me feeling better. The doctor they referred me to wasn't covered. And I spent days and days on the phone with them trying to get the referral sent elsewhere so it was covered. They gave me the run around. I then had to call my gynecologic and I told him what they said in the ER and he THANKFULLY helped me out and got it sent to a place that was covered. Then the waiting.  If you don't have a chronic illness or serious health prob...

 Do-Re-Mi! Okay, not that kind of beginning. The beginning of my journey. The journey I reference to when people say "You're too young to be going through this" or "You're so young, I'm so sorry" or "This kind of stuff should never happen, (again) you're too young" and I always respond "Well, this is just part of my JOURNEY" because to be honest, I don't know what to say when people say those things to me other than agree and say it's part of  my journey. I am a medical mess, it's a long story. So, lets take it from the top.  This story begins on a cold January morning with snow a few feet high. Four boys being put in a big red 4 door ford. Then a man and woman climb into the front seats. This is my wonderful beautiful family. And this day is when I was born. I have four wonderful older brothers and a loving mother and father. I was brought into this world on my mother's birthday. And what a beautiful thing, I get ...